Monday, 23 March 2020

I was tested for Covid-19!!!

I couldn’t sit up or lay down. 

The pain was easily a 9. Coughing gave it a 15 or some other crazy high number. Worse pain than giving birth to twins anyway. 





During the day it seemed to get worse, I’m not sure why, but we were all getting a little concerned. 
This was me; good with pain. 
Nathan was calmly worried. 
So we called a breathless family meeting and in between coughing hard, choking and gasping for air, we agreed to phone 999. 111 seemed pointless as the second I said I had chest pains they would send an ambulance anyway. 

Not many questions were asked before the operator said they were sending an emergency ambulance even though I said I had an ambulance two weeks ago and they diagnosed pleurisy. Carefully they explained that due to my symptoms the crew would be in protective stuff. Totally fair enough but this wasn’t Covid 19 was it. Two nice ladies dressed in green with aprons, gloves, masks and even eyewear rocked into my bedroom with all the usual machines. ECG stickers were on pretty instantly and I mentioned that I was sure it wasn’t heart-related but rather more something to do with the cough. Sats (oxygen) were typically not bad. They had been very up and down on my machine. Everything else was textbook and they couldn’t hear anything in my lungs. So they were thinking dry pneumonia. 
Scary word. 
Impressive, but scary. 
We discussed going into hospital to get a chest X-ray as this has been going on for four weeks now. So long. Might as well. I need to know if I need treatment. But the NHS is strained. What can we do? The crew seemed to think it was a good idea and left my house to start up the ambulance. Trying to put my coat on was a killer.  The pain was a defo a 9/10. Jasmine helped me with a scarf which had freyed ends which I could fiddle with and keep myself calm. The same theory as a fidget spinner. Hmm. The paramedics started to get me in a mask and stuff before removing their own. Crikey they looked different than I expected now that I could see their whole faces. I was sleepy and a little nauseous. The last massive cough took its toll on me. I felt I was being brave giving the pain a 7/10 at that stage but the paramedic raised her eyebrows and informed me 7/10 is high! 

I wanted to sleep in the ambulance. But they phoned through to the hospital who informed them I need to go into isolation when I get there and be tested for Covid 19. Woah. This sounds massive. Scary. Surreal. Entering ‘side room 1’ I noticed 'covid 19 testing area' on the door. “Ohh look, pure luxury,” the paramedic joked, “that’s Medway for you.” She said lightheartedly. The Medway has been a hero many times for me. 




Instantly I was alone and the door closed behind me as I decided to sit on the hard, red, plastic chair in my sleepy pain induced state. 


Very quickly, another ECG and set of obs were taken. The results were flashed through the window at someone, maybe a nurse, who was writing the results down from the safety of behind the glass. Soon after, I learned there’s a ten minute window for them to get in and out of the room. I felt for these staff, working so hard and actually putting their lives on the line. I wanted to give her an extra warm smile, but that didn’t work from behind my mask, instead I said thank you a few extra times. Actually, here I was, being tested for Covid-19. When we thought it was pleurisy which needed more treatment. Suddenly this apocalyptic feeling felt more real than ever. Even though I still wanted to sleep, I felt it would be a good thing to get tested and head out of here. After lots of texting and a slightly cloak and dagger sympathy post on my Instagram story, the Dr came in to charm and fix me. I answered the questions again about Mexico. 
“20th January,” was when we came home, 
“25th February,” was when the cough started. They wondered how I remembered that. It would have been my brother's birthday if he were alive, and I was away somewhere memorable on that day, with this brand new tickly cough. 
“Two weeks ago,” was when I was diagnosed with pleurisy and the first ambulance came out. And a couple of days after that I was at the out of hours dr being told I don’t have pleurisy but a swollen throat, given steroids and an inhaler. And here we are now. With my 9/10 pain and a clicky rib. 

The Dr informed me my cough sounds wet. 
So not Covid-19. 
And he was mighty pissed off that I was now sitting in a hot zone where patients have tested positive for the virus. He said the paramedics shouldn’t have put me in that risk. He also said the steroids were a baby dose and I need a big dose, plus antibiotics, at a minimum a chest X-ray, diagnosis and to get the heck out of there and home. “I can’t touch your heart or lungs but I can touch your ribs and the pleura is stuck to the ribs. It’s very painful. You need treatment. We have to check what’s in your lungs.”  He was friendly, apologised for rushing and left.


Sitting alone for a good couple of hours, texting my son with thoughts and updates I began to wonder how the heck do I make sure I haven’t picked up this worrying virus? I heard a knock and called out ‘hello’.  “Can you come to the window?” I heard. So I did, and pulled back the grey vertical blinds. The smiling nurse wrote me a note and showed me through the window. “We haven’t forgotten you, we are waiting for an X-ray slot :)” they drew smiley faces on the note. Super cute. I felt so tired, I was sliding lower on my chair when another knock on the door came. “X-ray time my love,” the friendly nurse called out and walked faster than I could towards the X-ray area. I tried not to touch the doors, but kicked out my leg to then waft my way through. This is a week when I’ve heard the term ‘touch-point’ used frequently. 
The term needs no introduction. 


The window where we communicated


Outside of X-ray was an old man sleeping in his bed. A huge white gauze dressing was on his chin and I tried not to stare.

My son, Nathan was in the near by waiting room and he said he would come and sit with me while I get my X-ray done.  Afterall, we don't need to socially distance ourselves as we live together. He had never seen me with a face mask on before, that must have been strange. 

Inside the X-ray room, the staff member was in all the usual PPE stuff and was very sweet with me. I took off my necklace and stood at this metal plate in a position that hurt my ribs. She asked me to hold my breath as she took the image. 
"I'll just check that, take a seat," she said and soon after came out and wished me well in an empathetic manner,  which worried me. What had she seen?


They are ready for the outbreak


"I best get back Nathan," I told my son as i crossed the barrier with the words HOT ZONE COVID-19 DO NOT ENTER on it and began to look for side room 1.  I couldn't find it. I felt I was a risk to others and I felt myself getting stressed and irritable, which was the last thing I wanted when these lovely staff were trying to help us all.  A small man dressed in scrubs saw me looking lost and flustered and asked if he could help, I explained and he got up slowly from his plastic chair and told me to follow him.  I didn't want to be putting other people at risk; why wasn't he walking faster?
"That button," he pointed, "that button," he repeated as he nodded to one of those buttons which will release the door.
"I don't really want to be pushing the button," I said as I made a 'tut' noise with my mouth. 

On the other side of the door were two male paramedics checking in another patient, I looked at them, they looked at me, shrugged and I shrugged too, "I'm mean to be in isolation, room 1, he's taking me here, this isn't right!" I was a little short, and dissapointed in myself. They pointed to a door and as I went through there I saw my team of Dr and nursing staff and they kindly said, "In there love," and pointed to side room 1.
" I didn't really want to infect anyone!" I said grumpily as I allowed the door to close behind me; back to solitary confinement. 




Exhaustion was setting in. Either it was that or the Tramadol was starting to work as I felt sedated. A bed would have been lovely in that room but I felt like a brat with that thought. I fiddled on my phone for another twenty minutes and then a knock on the window alerted me to the Dr who used sign language to tell me he was going to phone me on my mobile. For some strange reason I held my phone up to the window, pointed to it and mouthed, "this one?" and he nodded and gave a thumbs up.

Taking to my seat, the phone rang with unknown number and it was obvious who that was at 3am.
"I don't want to alarm you," he started as my heart sank, "but every time I come in there I cost the NHS in PPE so this is easier. Now, we can see on your X-ray there are changes in your lungs which is a lower respiratory tract infection. So, it's needing two lots of antibiotics and very strong steroids that I can give you. You need to take an inhaler and use it throgh the day to open up the airways. You don't have to wake up to use it but you must use it regularly as your oxygen is quite low.  And then we need plenty of management for the pain.  So I'm going to get you your medicines and then you can go home. Is there someone we can call to pick you up?"
"My son is out in the waiting room, he's been there all night, he's a grown up and he drives,"
"Ok, what's his name? I'll go and talk to him.  But listen please, this is very important that you realise you are very unwell with this pneumonia infection and you are a sitting duck for the big virus and you must self isolate for a period of twelve weeks. Please keep the mask on until you get home and then remove it and throw it away. You must go straight home. Catching anything more will be a worrying time for you," he explained with a wonderful tone, clearly, understandably and with great care.  I felt worried.  What if I now had picked it up? 

I have both pleurisy and pneumonia.  No wonder I have been feeling unwell.  I was going to take every tablet the told me to take, rest, drink water and get rid of this infection, then I can make great use of the time to write the books and sort my house out ready for the renovations.

Surely I will be okay.  I am afraid.
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Saturday, 18 August 2018

I’ve been diagnosed with Ankylosing Spondylitis

This blog post is disguised as a positive one I promise. It might not seem it initially. 

This week I was shocked to receive a letter from the hospital following an MRI I had a few weeks ago. 
Reluctant to lay in the machine, I felt so nervous. I’m not sure what I thought might happen but the heart was pounding anyway. 
Thankfully the amazing hospital workers had no hesitation in letting me use a machine which they told me was a bigger one. Still looked small to me. Yet I appreciated how sweet they were considering it was the end of the day. Without their kindness I expect they could have left earlier for home. 

Previously, an MRI (they were looking for spina bifida occulta) showed 3 degenerative discs. One facet joint had some osteoarthritis but let’s face it, I’m not 21 anymore. So part of me almost didn’t go for the test. 

The results informed me I have Ankylosing Spondylitis

There are square vertebral bodies with lesions, sacroilitis on both hips both sides of the joint and it generally sounds like a lot of inflammation is going on. 

Stunned. 

I’d read around AS before but was thankful I didn’t have it. Now I do. 
This is life changing. 

A chance of spinal fusion is frightening. This means the spine ends up one big long bone rather than lots of little bones. 
The treatment is naproxen which will flare up the crohns so we can’t go down that route. There is biological treatment available but I know nothing about that yet. 

Already, I’ve made positive steps in my research and hope things can continue to give me hope. 

I’m feeling like I really want to crack on with living life just now. Travel. See the world. 
Sort my house out. 
Get some building work done. 



Apparently, daily exercise is a must. Eating a low starch diet is also proven to help. If you want to read around the science bit, I’ll link it here. I am excited to read that one of the bacteria in the gut (which loves to feed on starch) is linked to CD and AS. So, this makes total sense as when I followed the specific carbohydrate diet my gut flora changed, as did the back pain. 

At the age of 13 the back pain started. No one seemed to think this was unusual and I’ve lived with a bad back ever since. Around the same time (tmi warning) I began I lose blood from my intestines and the GP decided this was likely heamorriods without an examination and for years I lived on medication for that until my crohns diagnosis 25 years later!

It’s bad. 
But. 
I can’t turn back time. 
So what can I do?  I can exercise daily and eat right. 

I can live life. 


**********************************************

Are you with me? Will you support me?
For the first time ever i feel 100% focused and determined with every bone in my body (!) to get this blogging and writing career really flowing. Every time you read, share, like and comment it helps to get me towards this goal.  Thank you!
Don't forget you can get informed of each post into your inbox here.
Also if you would like to subscribe to my email list (which to be honest, i haven't sent out hardly any of those while I have been at university but things are about to change a little) of course you can watch the video versions of my antics on youtube


Let's keep things positive as I totally step into leading my very best life.

Love, as always

Louise xoxox


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Friday, 7 August 2015

Podcast episode number 2 - taking the Crohns disease by storm!

I'm humbled, shocked and chuffed to bits with the downloads on my new Podcast.  

You may have seen my blog post telling you about the podcast as that got so many hits! 

You will know that it is very very niche subject, talking about the autoimmune diet and how it is helping me with my health.
Something that I have avoided talking about for quite some time is this little niche subject,  yet I get so frustrated when I see people getting so poorly and they are advised to eat bland foods like bread and pasta! No! No! No!

With this in mind, I decided to get myself even more educated, read more and share my story. Hoping to help a couple of people into better health.  Some days, I'm not the walking picture of health I dream of being.  Although things would be a whole lot worse if it were not for the food choices I make.  I'm fairly sure I would have undergone surgery by now.  Hence, the wish to spread the word!

Although I've not gone to great lengths to promote the podcast there have been an amazing amount of downloads and this pleases me :) Happy to know that people are enjoying the podcast.
If you haven't checked it out yet, head over and see what all the fuss is about.  The first half is generally chit chat and catching up and the second half is getting to the nitty gritty of the information I want to pass across.

So here is the link for you! I'd love it if you would subscribe...https://itunes.apple.com/gb/podcast/autoimmune-diet-and-me/id1023129375?mt=2



Much love

Louise xoxo

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Recommended books for your Lusher Life: http://astore.amazon.co.uk/lusherlifefavouritebooks-21

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Thursday, 30 July 2015

Autoimmune diet and me - my podcast!

Hey everyone!!!

I'm thrilled to bits to announce my new news!

iTunes have accepted my podcast request and you can now subscribe to my podcast over there! I'm chuffed to say the least.  I was thinking it would be so so complicated and as you know by now, I've lots of fingers in many pies already!

Life is busy already.

Although you will come to learn over the next few weeks on the podcast, that life has *got* to change for me.  It's a must!

So what is my podcast all about?



I have opted to not just chit chat (although there will be plenty of that in the beginning of the podcasts!) but the second part of the podcasts I'm going to niche right down to talk about making health better through using the right nutrition.
For myself,  you might well know by now that I have Crohns disease (among other things!) and this is one of many autoimmune diseases.

Just recently, I had a turning point, an AHA moment, if you will, and this has lead me to this place.

You may know I'm currently taking a degree in Human Nutrition and I love all things like that.  Perhaps I can help someone you know too.  So I will be starting to chat about this a little over on my Youtube channel too as well as all the usual Vlogs.  

This coming week, I will be putting up another show where you can see me opening up and speaking honestly about what made me decide to get back to the special autoimmune diet.  Also how I'm feeling now.

You will make my day if you come over for a listen and perhaps share. The great thing about podcasts is you can download them to listen offline,  just the same way as you would the latest album release (although the podcast is FREE).  You can listen in the car, in the gym etc so head over to the link below and find me on iTunes.  Let me know you've subscribed too.  I'd love to hear from you if you are a listener but definitely if you are also an autoimmune illness sufferer.

Meanwhile, wishing you much love

Louise xoxo 

https://itunes.apple.com/gb/podcast/autoimmune-diet-and-me/id1023129375 

Find me:
Facebook: http://www.facebook.com/louiseushercoach...
Twitter:      http://www.twitter.com/louiseusher...
Blog:          http://www.louiseusher.co.uk (blog)
Instagram:http://www.instagram.com/lusherlife...
Podcast:    https://geo.itunes.apple.com/gb/podcast/autoimmune-diet-and-me/id1023129375?at=1001l626&mt=2&ls=1

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Advertise on my blog: (from only $5)
http://www.louiseusher.co.uk/p/sponsor.html

Books:  My amazon author page: http://www.amazon.co.uk/Louise-Usher/e/B00C1KEE5E 

Recommended books for your Lusher Life: http://astore.amazon.co.uk/lusherlifefavouritebooks-21

Email: lifenutrition@virginmedia.com

I'd love to catch up with you. Come and say HI.......


Motivational Merch:  Mugs, t-shirts and stuff http://www.cafepress.co.uk/profile/108959736

Health Stuff: https://www.foreverliving.com/retail/entry/Shop.do?store=GBR&language=en&distribID=440500051320
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